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Welcome to my new blog! Rather than writing, I will be sharing videos, so this will actually be my "vlog".
Who am I?
I am a designer from New Jersey and host of a local cable show call "A Taste for Design",
But being a Mom to my four kids is the most important job of all.
My son Robbie is 24 years old and has Severe Autism. When he was diagnosed, Autism was almost unheard of. Now there is a ton of "awareness" and information out there, and schools and programs for kids on the spectrum. But what about after they turn 21? What happens then? Well, Robbie and I are going to share our journey with you!
I recently placed Robbie into a group home (a nearly impossible feat) and have been transitioning him for a month. Last month I was sharing our trials and triumphs with our friends and family on Facebook and decided it was easier to just take video than to talk about it.
After I began filming, I realized that maybe there is a bigger picture. Maybe we have a message we can share to help other families that live in the world of Autism. So I began this blog to share my life with my son Robbie as a way to reach out to other parents, and spread the word that "The world is not ready for that '1 in 55 kids' with Autism after they turn 21". But hopefully as we put ourselves out there, someone will take notice, and begin to make changes in the "system".
So welcome everyone to our life's journey!
First, here is my introduction to who I am, and what the vlogs are all about:
Here is our first episode.
Episode 1: Wednesday. "Let Us Begin"
I had the pleasure of working with Robbie for three years. Robbie is a very sweet boy. You are a very strong woman, and I just wanted to thank you for sharing Robbie's life after the DLC with the world.
ReplyDeleteOver the years I've watched the Robbie and Me episodes. I found you while googling autism.
ReplyDeleteI have raised my beautiful daughter by myself.
Alexandra was diagnosed with Tuberous Sclerosis at 9 months, back in 1999. Shes 21 and severely autistic. Nonverbal, minimal signing, with receptive language skills,horrible SIBS and agression to me.
I did have psychiatrists, behavior specialist, tss support,but could not undue the aggressive behaviors as I was supposed to ignore them. She was soo violent I had to react to keep her safe.
It was a lonely, isolated life.
Thru you're videos, I laughed, cried, and related and learned so much from you.
You became my support,my hero,I felt I knew you! I appreciate your strength. You're love for Robbie is beautiful...my love for Allie is unmeasurable!
I was shocked,devastated when I saw Robbie had passed away. My heart broke for you... I thank God I have my baby! Safe, adjusted and active in a group home. But, Robbies passing hit so close to my heart...
I admire your love, passion and unbelievable strength. I have found strength in your strength.
I AM SO SORRY for your loss.
I AM SO GRATEFUL you became part of my life! I pray for peace and strength for you. You and Robbie have touched my life and my heart.
Sincerely,
Georgette Ottobre